Support Groups

Macmillan Cancer Information and Support Centre

Offers a vast range of information covering topics such as cancer prevention, screening, signs and symptoms to look out for, cancer types, treatments, and living with and after cancer.

TuVida – Support for parent carers of children and young people with disabilities and additional needs

Parenting a child with a disability or additional needs can often be a rollercoaster of emotions and experiences. It can be really hard to talk to others about how you feel or what you are doing as you may feel they might not be able to understand it fully.

Nottinghamshire Carers Hub is able to offer you advice and support, and signpost you to other organisations who may be able to help.

Where to go for Advice and Support:

Navigating the often complex public services put in place to help your child can be confusing and stressful but there are a number of organisations that can help you with direct
information, advice and support.

Autism East Midlands is the largest specialist autism charity in the east midlands providing direct advice and support
services to parent carers. They host a free national helpline which is open Monday to Friday between 9.30am and 5.00pm Tel: 0808 808 3555
Email: [email protected]

APTCOO (A Place To Call Our Own) Mansfield based
organisation offering support and activities to families.
Tel: 01623 629 902 Email: [email protected]

Aebal Leisure (18+) providing social support for adults with mental health problems, autism and learning disabilities.
Tel: 07591 555 858 Email: [email protected]

Ask Us Nottinghamshire is an independent Information, Advice and Support (IAS) service who provide dedicated and impartial advice to young people and parent carers.
Tel: 0800 121 7772

Independent Parent Special Education Advice (IPSEA) IPSEA offers free and independent legally based information, advice and support to help parents get the right education for children and young people with SEND.
Tel: 01799 582 030 / Email: [email protected]

Family Fund Family Fund is the UK’s largest charity providing grants for disabled children and their families. Last year they provided financial support to over 70,000 families. Tel: 01904 550 055 / Website:

Special Needs Jungle provides parent-centred information, news and resources about SEND.

Sunshine Support provide independent information, advice and support to parents/carers and professionals of children and young people with special educational needs.

Local Authority Information
Nottingham City Council Children’s Services: 0115 8764 800
Nottingham City Council Adult Services: 0300 131 0300
Local offer for children and young people 0-25 SEN & Disabilities

Nottinghamshire County Council: 0300 500 80 80

Parent Support Groups
Parent support groups are a great way to meet other parents and carers for practical and emotional support.
Most support groups are set up and run by parents and carers of children with additional needs

Nottinghamshire Parent Carers Forum
Notts PCF is an independent parent carer led organisation run by volunteers who represent the views of families who live in Nottinghamshire with a child or young person with an additional need or disability.
Tel: 07751 776 481 (Chair) / Email: [email protected]

Rainbow Parents Carers Forum
A parent carer led organisation for families with children and young people with additional needs whose mission is to ‘Support and Empower Families to be Heard and Achieve Better Outcomes’ and has families from both Nottingham City and County.
Tel: 0115 786 0211 / Email: [email protected]

Spectrum Wasp
A well established Nottinghamshire support group for parents, children and young people with additional needs. Lots of activities to attend.
Tel: 07746 185 394 / Email: [email protected]